Being a caregiver comes with lots of challenges, especially when working with multiple healthcare systems. It can be difficult to figure out where to begin, who to be contacting, or where to find the right resources. Eating disorders require specialized care, and navigating appointments, therapy sessions, and treatment plans can feel overwhelming. Without clear guidance, it’s easy to feel lost while trying to ensure your loved one is getting the care they need.
In this blog I hope to offer some guidance and some tips on how to go about the process of advocating with health professionals as well as offer some resources that may assist you further. With the right tools, you can ensure your loved one is receiving the necessary care while also taking care of yourself throughout this journey.
What does being an advocate entail?
Essentially, being an advocate in this context means that you’re the main communicator with health care professionals, and that you represent the needs and concerns of your loved one. This might look like;
Keeping in direct clear communication with your loved ones' dietitian and therapist to ensure that plans are working out or what needs changing.
Asking questions about treatment plans, diagnoses, or what certain medical terms mean.
Making any concerns clear, requesting alternatives, as well as anything else that might be necessary to work in your loved one’s best interest.
Making decisions based on your loved ones needs, going by their goals and preferences, respecting their autonomy.
Network of support
As a caregiver, having a support network of not only family and friends, but also people who might be on a similar journey as you is important. This will offer a sense of security, comfort, and guidance. Here are a few ideas of what you can do to build a network of support:
Join a support group for those with a loved one who has an eating disorder.
Connect with other caregivers, possibly through those support groups.
Seek out resources and information. Individuals in your support network will likely bring different perspectives, experiences, and may have information and resources to share.
Some helpful resources/groups:
Communication
Keeping in constant communication with the healthcare professionals helping your loved one is necessary but can sometimes present challenges. How do you go about this?
Keep a written record of everything, every appointment, email, phone call, etc. as well as writing down all contacts, names, dates, and keeping everything in one place for future reference.
Communicate clearly, have questions ready and be upfront about what your loved one needs.
When dealing with possible conflict, be respectful, be clear and actively listen to the people you’re communicating with
Constantly checking in with your loved one, involving them in every step of the process
More important resources
Please feel free to check out any of these resources:
Advocating for a loved one’s care can feel overwhelming, but with the right tools and support, it can become a manageable journey. By staying connected, asking the right questions, and building a strong support network, you can help ensure your loved one receives the care they need.
Remember, while you advocate for them, it’s equally important to take care of yourself along the way. You’re not alone—lean into the available resources and trust that every step forward makes a difference.
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